The spread of digital health and data-driven technologies in the biomedical field has the potential to ensure better disease prevention, personalized therapies and more accurate patient diagnoses. The Covid-19 pandemic has in fact prompted a global trend of digital transition in the healthcare sector.

However, the regulatory framework within the European Union and technical barriers may hinder the adoption of efficient technological solutions at the expense of patient care. From this need came the white paper “e-Health Data Sharing”, a project that aims to define a regulatory and technical framework that represents the new level playing field in the healthcare field.

Data Valley has organized a heterogeneous working table to deepen, in the dialogue between experts, hospitals, pharmaceutical companies, associations and other operators in the sector, the theme of the enhancement of data for research and for the development of new solutions and forms of interaction.

The white paper produced by the working table describes the state of the legal and technical art and the perspectives in the collection, access, storage, use and reuse of health data, focusing in particular on: the sharing of personal and non-personal data, anonymization and the new techniques used to protect patient information, such as synthetic data, the enhancement of data through sharing, and the creation of new products and services based on data in the healthcare world.

The publication of the white paper “e-Health Data Sharing” marks the conclusion of the first phase of a process and the starting point for building a multilateral comparison between stakeholders, involving institutions, the academy and the private sector. More precisely, as Data Valley, we will continue to collect and integrate new contributions to enrich the first version of the white paper and we will create complementary tools to this document, such as checklists and toolkits, in order to highlight the most relevant elements.

In the fourth episode of Data & Co. — Opportunities with Data, the Data Valley team presented the e-Health Data Sharing White Paper together with some of the participants of the working table who contributed to the drafting of the document.

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